On Friday, November 22th, the third Symposium entitled “22q Awareness Day ” was organized within the STREAMLINE project. We gathered around researchers, doctors, parents and children living with 22q11 deletion syndrome. This was another wonderful meeting with the hope that it will grow into a tradition.
The Symposium started with Dr. Danijela Drakulić who presented STREAMLINE projects activities. Her opening speech was followed by from representatives of National organization for rare diseases of Serbia (NORBS) and “22q ex YU”, Stefan Živković and Vesna Vujičić, who talked about the current activities of their associations. At the end of opening speech Ana Knežević (President of inclusive center “Here’s a hand” (Evo ruka)) said that her message is that we should help to parents and children living with 22q11 deletion syndrome.
STREAMLINE team members spent this wonderful evening with parents and children living with 22q11 deletion syndrome, enjoying in good talk and music. This was a great opportunity to better understand the life of people with 22q11.2 deletion syndrome and their daily struggles, but also to become familiar with their way of thinking and their many talents. Perhaps the most important thing is that this Symposium enabled parents who share the same problems to exchange experiences, to broaden perspectives, and create new contacts.
